Palliative health care for amyotrophic lateral sclerosis patients

M. N. Zakharova; Захарова М. Н.; I. A. Avdunina; Авдюнина И. А.; E. V. Lysogorskaia; Лысогорская Е. В.; A. A. Vorobyeva; Воробьева А. А.; M. V. Ivanova; Иванова М. В.; A. V. Chervyakov; Червяков А. В.; A. V. Vasiliev; Васильев А. В.

doi:10.17650/2222-8721-2014-0-4-4-11

Palliative health care for amyotrophic lateral sclerosis patients

Authors: Zakharova M.N.¹, Avdunina I.A.¹, Lysogorskaia E.V.¹, Vorobyeva A.A.¹, Ivanova M.V.¹, Chervyakov A.V.¹, Vasiliev A.V.¹
Affiliations:
1. Research center of neurology Russian Academy of Medical Sciences, 125367 Moscow, Volokolamskoe shosse, 80.
Issue: Vol 4, No 4 (2014)
Pages: 4-11
Section: LECTURES AND REVIEWS
Published: 19.12.2014
URL: https://nmb.abvpress.ru/jour/article/view/31
DOI: https://doi.org/10.17650/2222-8721-2014-0-4-4-11
ID: 31

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Abstract

This article is a critical review of palliative care for ALS patients in Russia. The authors summarize the principal European guidelines, analyze local practice guidelines regarding palliative care, present their experience in ALS patients care in a multidisciplinary team (project
of the Orthodox service "Miloserdie"). Аuthors describe the main approaches for ALS symptom management available in Russia (including swallowing difficulties, breathlessness, pain, difficulties in communication).